a.c.i.d.p.
Thursday, Sept. 26, 2002
Yesterday my husband was diagnosed with acute inflammatory demyelinating polyneuropathy. Tonight they are doing further tests to make sure. But after doing tons of research I believe we have found the answer to his physical condition and problems. You can read about it yourself� I have spent the last day in a drug induced sleep, crying and in shock.
reading this
and
this
and
this
This disorder is very unstable. Can lead to complete paralysis and/or death in some cases. The cause is not known and there is no effective treatment.
I have been reading real life stories like this man�s story
I found a board where he can go and read about what is happening to him and perhaps find support . it is here
(The two known treatments, plasma-pheresis and IVIG cost about $50,000)
We do have insurance.
There are some extenuating circumstances that are quite scary for me. To those of you I have confided in and found support, I thank you for your concerns and well wishes. Husband is 38 years old. He is having difficulty walking and he is still fortunately able to go to work.
I am still in shock. Special thanks to Sandy�and MP�without you guys I�d be more lost than I am�
PoeticaL
